I live in Ireland and at the age of 62, it was only 22 months ago that I found I had Obstructive Sleep Apnena.
Like many of us with this condition our first visit to see a specialist can be somewhat daunting, so when you find that the treatment you have been prescribed seems somewhat out dated, you are left in a kind of limbo as to what to do next, as you are told take the treatment or leave it, this is done in a patronizing way, which leaves you feeling somewhat guilty as to having been there in the first place.
You then fined yourself plunged into a world you have never experienced before, and on the arrival of a CPAP machine and its mask you are told here it is this is how it works, now get on with it.
Absolutely no mention or instruction on how to deal with mask and pressure problems, and nothing about the ordeal you are about to face with sleep, having your pressure set to high, anxiety, and mood swings, only that you are given a phone number as a point of contact if you run into these kind of problems.
Now this is fine if only you could get the service at the other end of that phone to answer your call, which you later fined out you can only contact that number on a set day during the week, and then you may not get someone
that you can talk to who knows details.
You are also told that your machine provider will see you every 6 months to take a data reading from your machine to see how you are managing your treatment.
I just hope that after reading that last two paragraphs your not in to much disbelief, as it is certainly the way it is here in Ireland.
I have for the most of my 22 months regime on CPAP managed my own care, done all my own research, and have had to go cap in hand to get the health service here to give me the help I needed.
So my question is to all you lovely people over there in America,“Why has the technology, aftercare, and sites like this not reached us over here as yet”.
Is there no of sharing information with other countries? I am amazed as I read some of the story’s here as to the kind of care, and equipment (some of which we here have never heard of before) you guys get, and for many I supposed your site can be a god send of help at the start of their journey with CPAP.
Can there be in the future any information sharing with other countries?