Introduce Yourself

Welcome New Members!!

Nozzzzs the whole sleep apnea thing is baffling. I suffer from Central Sleep Apnea, which has no known cause, and my bipap machine essentially keeps me breathing freely all day long, even when I am not wearing it. My sleep has gone from repeatedly waking up for 60-90 minutes every night, to sleeptimes of 7 hours, sometimes longer. I still occasionally wake up, but usually am able to get right back to sleep. It has given me a better quality of life, and solved the afib problems I had been having.

Hi Brian, the pressure on my Bipap is 12/8 and I still get drymouth and mask leaks all the time. The DreamMapper app for the DreamStation machine tells you on a nightly basis how many Central Apneas, how many Obstructive apneas, the amount of time the machine was used (how long you slept), and “mask fit,” the percentage effectiveness of your mask. It also tells your AHI, which is a measurement of the effectiveness of your therapy that night. I find this tremendously useful.

I am new to CPAP and alarmed by the billing sent to my insurance. Jan 1 I start a new deductible so I’m looking to buy a machine out right.
I’m trying to decide if one with humidifier is worth it. I currently use a nasal mask and a dreamstation machine with humidifier. The machine has started shutting off on its own and I’ve only had it since Nov 30… wore my mask 7 hours last night and had 18 disconnects and only 4h17min recorded use… also getting stuffy with or without humidifier. Also since this started Wed night my AHI have been higher and there’s just a difference in how I feel.
That’s a lot for an intro. Sorry but I run a home daycare so time to type stuff is precious and rare. Therefore I try to get everything in one message. Lol.

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Hi, Rus here. I’ve had SA and a cpap for the past 5 years. I have a tough time staying asleep throughout the night. OTCs make me groggy. I’m trying to relax my mind and body whenever I do wake up in the middle of the night. At times I get out of bed to read and to drink a hot sleepy time tea or warm milk and honey with a few drops of valerian extract. This doesn’t always work. I am looking forward to being involved with this group for insights and suggestions. I am also very interested getting some recommendations about travel cpap machines. Thanks!

Thanks for creating this thread.

I am a doc from Texas.
I love coffee.
I happy when my patients feel healthy.

I stopped using the cpa p after 6 months because there was no improvement in the way I felt. I have felt better in the last 6 months but the RLS symptoms have gotten worse.
I also have insomnia now. So trying Lyrica today.

My name is Terre Dalton and I have had a c-pap machine for 11 years. I can never get a mask small enough for my face but have managed to use it where it does not leak that much if I lie on my back to sleep. Last year I put an app on my phone called SnoreLab which records everything that is happening even with audio while you sleep regarding your snoring, interruptions like not breathing and more. I was shocked at the results and have not missed a day since without using my c-pap. I had 2 TIA strokes in 2015 due to A-Fib and luckily had no permanent damage so anything to make me healthier I do. One thing I have a problem with still is I never feel rested or better after using the c-pap as so many people say “You will feel so much better”. I am tired and exhausted all the time. My doctors say my heart is fine except for the A-Fib sleep apnea may have caused the A-Fib for which I take meds and my thyroid is also slow for which I also take meds. I also have terrible insomnia sleeping only about 4 to 6 hours a night. I can fall asleep immediately but I am awake every 2 hours and cannot get back to sleep for at least 3 hours in between. I have Ambien but have never taken it because I have been known to sleep walk. So I do not want to sleep drive. Every once in awhile I will sleep 8 hours (maybe 2 times a year) and I feel great but only then. Any suggestions? Anyone else doing this also? I am posting this pix of my SnoreLab Results with a score if 127 without my C-Pap, this is me for 59 minutes. I highly recommend this free app so you can monitor and listen to yourself snore. This made me wear my c-pap and probably saved my life. I still wish I could sleep more hours and feel more refreshed though.

Hi everyone,
My name is Mike, I have just joined your forum and am very happy to be here, I am 62 years old, and first had a sleep study done at the insistence of my then partner for my snoring at the age of 50.

I was not told at that time I had sleep apnea, just that my snoring was very bad, and due to the study’s results was recommended to have a cpap machine, yet I was advised by the nursing staff that I would not be able to wear the mask correctly due to my constant turning during sleep, so I had to leave the study none the wiser.

at the age of 60 I began to realize that my snoring was getting very bad and was becoming more breathless, I just did not no or understand why all this was happening, so I had my GP send me for an assessment by a specialist,

For my first visit I had managed to get a copy of my previous sleep study and took that with me for them to look at, I was then told for the first time that I had sleep apnea, and recommended to have a cpap machine, with hearing this I explained what had happened 10 years previously, but I was just laughed at in a very patronizing way and told that if I did not have a machine that I could die in my sleep, that was it, I was told take it or leave it, so what choice did I have.

I was not given any new sleep study, only that I was told the cpap machine would read my data which would be assessed every six months, and that I would be tried on a set pressure to see how I went on, in other words I was just going to be their guinea pig,

Two weeks later my machine arrived and was given a brief run down on how to put on the mask, and how to turn the machine on/off, and believe me that was it for 6 months, my world went upside down, I had to learn for my self how to deal with all the problems that go with having apnea.

Believe me there was absolutely no follow up after care, all be it a nurse on the end of a phone who would listen to what I had to say about leakage, pressure problems etc.

This did not really solve anything, 22 months later after doing my own research into sleep apnea, I have managed to get the hospital to agree to put me on apap, and lower the pressure to a level I can manage.

So here I am today after coming across this great site, hoping to learn more and pass on what I have learned, as I do not wish anyone to go through what I have so far.
Many thanks for reading my blog, and I hope to hear from other users here as to there experiences.

Welcome, Mike! Thanks for sharing!

What brings you to our community?
Sleep abnea and AFib patient. Use a BPap machine. 3 unsuccessful cardioversions, not a good ablashion candidate do to large champer size.
Tell us about your current sleep routine?
Sleep good when I don’t have to report to work the next day. (Weekends, hollidays, and vacations.)
Finish this sentence: “Sleep is “important”.
Joseph Walz 62 years old

@walzja3 Welcome!!! Thank you for sharing your story!

What brings you to our community?
What brings me to this community is to find other folks who use a CPAP machine and if any success stories. Hopefully, find other folks who struggle with sleep apnea can help me. I am trying to find out how I can exercise more effectively so I can lose weight. I need specifics on what I need to eat and what exercises I need to do to lose weight so I can stop having sleep apnea and so I can get rid of my CPAP machine.

Tell us about your current sleep routine?
I go to sleep at around 8:30pm or 9pm and wake up at like 5:30 am

**Sleep is a struggle for me. Since I was 12 I have struggled with insomnia. Some nights I can’t get to sleep. Some nights I can get to sleep fine and other nights I can get to sleep but can’t stay asleep. It has been for the last 10 years. It has begun to get worse back in 2011. I saw a sleep doctor and I took my first sleep test in 2014. The machine I got was tough to get used to. I scrapped using a CPAP machine and began to use a retainer appliance and I took another one in 2017 when they found out that I needed to get fitted with another CPAP machine. This one has been a lot better experience an AIRSENSE 10 RESMED brand. I have moved to a new city and want to get healthy and not have to depend on having a CPAP machine. Some of my sleep trouble of staying asleep may have to do with anxiety and depression. I do have circular thoughts but I am not sure how these affect my sleep.

  1. How can you exercise effectively to lose weight so you can get rid of the CPAP machine?
  2. Are there specific exercises help to lose weight that is geared for sleep apnea sufferers?
  3. What is a good diet to help lose weight?
  4. What should the routine of a sleep apnea person be during the day and night?

Sorry if these are so many questions. I just want to make sure I get the right information and connect with the right people. Thanks for helping!

I do not know of exercises specifically designed for this, but here are some tips from the CDC about eating for a healthy weight.

As far as a routine, do you mean what hours to be asleep and be awake?

What brings you to our community?
Hi Everyone. First time here. I am here for support in adapting to my apap machine.

Tell us about your current sleep
I put on my mask but take it off. My stomach hurts and it may be from the air. I restarted using my machine in January. At first I was able to use it for an hour or two.

Finish this sentence: “Sleep is-important for health.

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Hi Everyone!

What brings you to our community?
I found this site through a google search and am happy to be a part of and contribute to this community.

Tell us about your current sleep

I’ve been suffering from a lack of sleep for the longest time now. I haven’t gotten to the point where I’ve been diagnosed that it’s a disorder or condition yet. A bit scared to find out, actually.

I just never seem to get enough sleep and wake up rested. There’s definitely some stress and environmental factors at play, but I think it’s been so long that it’s become a habit…I know, it’s bad.

Recently, I read this helpful article that talks about 12 things to do for better sleep that I thought I’d share with others.

I don’t really have one, because that’s the big issue. I sleep when I feel tired - sometimes 9pm, sometimes 12am or later - and wake up when my alarm tells me to - around 7am on most days. On weekends, I get to turn off the alarm but I still wake up around 7-8am…

Finish this sentence: “Sleep is life"

Hello everyone, my name is Bob, I go simply as Bob. I am a truck driver and an ex-opium addict, I overcame my addiction a few years ago and I’ve been clean for 5 years. I started using opiates because of sleep disorders I had, I was truly miserable, then I didn’t have enough money to pay for my meds and I started buying drugs in the black market, this dealer I had sold me powder heroin but my addiction got worse and I started to shoot up.

A lot has changed since then, my first sign of hope was going to rehab, I was in rehab for 8 months and after I got out I had trouble sleeping again so I went into some forums, there I found medical marijuana and decided to give it a try, it has been my savior since then, I am now happy, I have a wife and a child and my current sleep routine is bed time at 9 o’clock and then light out until 6 am.

Sleep is wonderful

I am Mary . I have suffered for sleep apnea. Last I can recover it. I will share my experience.

I came looking for a place to donate a little used (less than 30 times) CPAP. I received a new CPAP yesterday and I am committed to using it this time.

I rarely sleep more than 5 hours a night and according to my fitness tracker it is usually in fits and starts. I did a new sleep study and hope to improve my sleep efficiency and daytime sleepiness.

Sleep is dream…I hope to enjoy.

We need your Help! Do you have gently used CPAP equipment?
The CAP program needs donations of CPAP, Auto CPAP, Bi-Level and heated humidifiers, factory sealed masks and new unused tubing.

If you don’t have CPAP equipment to donate, you can still help! Donations to support the ASAA are greatly appreciated – click here to make a gift online.

The American Sleep Apnea Association acknowledges and thanks the following organizations for their generous support of the CPAP Assistance Program: