Tomorrow I have an appointment with a surgeon to discuss the Maxillomandibular Advancement procedure. It looks scary, but I want to have it done so fingers crossed. I’m 56 years old and feel like I hit a sort of rock bottom. I am always tired, sleepy, unmotivated, forgetful, depressed etc etc etc. Its been this way for years. I was first diagnosed with OSA in 2005. I tried a CPAP but did not tolerate it well. I would take the mask off in my sleep (or at least I would wake with it off with no memory of removing it). After a while I gave up. This year out of fear of losing my job and a lot or other things and with the advent of new therapies I returned to the doctor. I had a new sleep study which shows severe apnea. 75 events per hour and 02 levels as low as 54%. Doctors suggest the MMA surgery as the one treatment that is likely to give me significant relief over all others. I have a recessed chin. It has always been the one thing I hated most about my appearance. I had no idea that it could also affect me physically. I have read a lot about the procedure (and the recovery). It fills me with excitement and dread at the same time. I have this hope that if I have the surgery I will be like a new person. No longer will I be fatigued all the time, falling asleep at the wheel and in meetings. No longer depressed. Plenty of energy and will power to make positive lifestyle changes. AM I putting too much hope into this procedure? What if its not the solution I’m hoping for. I would love to hear from anyone who has undergone the MMA. What was it like for you good and bad?
mgar64 thank you for sharing!! I do not have any insight on MMA surgery, but I wanted to wish you all the best!! I am rooting for you and look forward to hearing your success story!! Take Care mgar64
I’m afraid my success story is turning into another disappointment. Apparently my recent sleep study show that in addition to severe OSA, I had an average of 10 central apnea events. The way the doc explained it he could do a perfect MMA procedure, but I would still be left with moderate central sleep apnea. I was dreading such an invasive surgery, but at the time so hopeful. It looks like the next step is to give the cpap another try. The folks at Duke Sleep Center tell me that there have been a lot of advancements in the technology in the past 15 years. When first tried in in 2005-06 I had trouble falling asleep, the sound of the machine would wake me, the blast of air into my face and mouth would wake me, every time I moved I would break the seal on the mask which caused it to make farting noises which would wake me and everytime I’d wake up I’d have to get up to pee. Many if not most nights I would wake up with the mask completely off because I had removed it. Sorry if this repeats a lot of my complaints from my first post, but I’m 56 and I am exhausted everyday. I fall asleep at my desk, behind the wheel you name it. I’m depressed. I’m just praying the cpap works this time. Not sure whats next if it doesn’t … maybe a different sleep center
What type of CPAP masks did you try?? I have tolerated nasal pillows and when mask leak started to increase after a year or so I started wearing a soft cervical collar at night and mask leak is minimal at its worst - obviously I began to mouth breathe during sleep but not a problem for a year or so.
I would seriously evaluate the CPAP system you used, specifically the mask type. Maybe you have done this already What was your AHI range when using CPAP and what was your mask leak rate?.
I tried 4 different masks in all plus several different types of head gear. Two were full face, one was a nasal mask that completely covered the nose and then there was a nasal pillow mask. I have a deviated septum that I never had repaired and I think that may have had a negative effect with regard to the nasal masks. My machine didn’t measure AHI or leak rate or if it did I wasn’t shown how to use it. Also it didn’t have things like humidifier or heated hoses. This was 15 years ago and I’m told there have been advancements, but I’m sure a lot of these features were available even if cruder in form.
I’m approaching things differently this time around. Last time I didn’t have a sleep specialist per se. My pcp referred me for my study. I never had a titration study. Just a visit where they showed me how to use the equipment and adjust the setting for me.
Now I’m at Duke Sleep Center. So far I’ve seen 3 different specialists, I’m due to have an overnight titration study in 2 weeks. Also I am researching equipment and masks and plan to demand the most advanced equip and will pay the difference out of pocket if necessary.
I’m trying a adopt a more positive attitude about using a CPAP.
mgar64 I am so sorry to hear of your new results! It is so true it seems like there are new findings and changes everyday in the PAP world. Know that we are here for you and you have a great support team at your finger tips! I’ll be saying a prayer for you as well! I’ll be praying you can focus more on the waking up refreshed and improving your overall quality of life vs the sleep therapy!! You got this!
I just saw this article this morning. I have not got to look into it, but it was intriguing.
Thank you for that! I just skimmed the article and it looks promising. Definitely something I’ll inquire about.
I was diagaosed in 2006. Originally, I has nasal pillows, several years ago I went to the Wisp, and the last sleep study showed leakage (although my PAP rarely shows it) So, the tech put me on the dreamweaver in the middle of the night. I like it, although, like all of them, there are drawbacks. It’s a full face mask, but doesn’t feel like it because it’s small. It’s the best I’ve had for reading. It doesn’t go over the nose, rather there is a slot that your nostrils sir on. When the air is on, that sucker glues itself in place. The only time I’ve had to adjust it is if I haven’t got the back sitting right, and it presses on my ear.
That said, I drool a lot with it. I’ve only had it a couple of months, I am hoping it’s just a result of getting used to having my mouth enclosed, I just keep a wash cloth near, wipe when needed.
Personally, I would try anything and everything before having a surgery that won’t cure everything. You have a DME, who takes care of your supplies, give then a call and tell them you need help finding a mask that will work for you.
It does take time to get used to it. If it’s blowing in your face, the seal isn’t working for you, you may need a different size. I also have a deviated septum, so I doubt that’s it. I also have a fat enough chin, it might as well not be there. There are a lot of options.
1st, find a mask that fits comfortably. Next, use it. You are already sleeping bad, what have you got to lose? It took me what felt like forever to get used to it. The best tip I got, from a member of a sleep disorders group, was to take a good breath in as you put the mask on.
Do you have a ramping for the pressure, or does it just slam that air in your face as you try to put it on?
Your insurace might pay for a new machine, it’s been over 10 years. I have an APAP, auto pap, it sets the pressure based on need rather than whatever number they set as ideal. You can also get a BiPAP, that one lowers the pressure when you breath out. Do some research on those. Do some research on masks, there are a ton out there.
Now a lot of the masks are a soft latex (for lack of a better word), and very comfortable as they are flexible to the nooks and crannies of your face- really helps with any leaking.
If there was a magic cure, we wouldn’t be here. Don’t let all your hope hinge on the surgery to fix it all, if you go forward.
And, search YouTube for help on the different masks and machines. When you are tossing the mask in the middle of the night, put it back on as soon as you realize it. If you fight it, get frustrated with it, remember this is for your health, and keep at it.
I usually just lurk here, but I have always found help. Someone in here always has tips, advice, or just a shoulder.
Just please, think long and hard before having that surgery.
Not that this isn’t long enough, but if you have a resmed machine there are a couple of buttons on top, other that the on one? Press them at the same time, and hold, the secret, Dr only place is there
@pennywheels thanks for your posting and sharing