I’m a 26 y/o female…my psychiatrist recently referred me to a neurologist suspecting narcolepsy. (Diagnosed depression, anxiety, and OCD)
I’m just wondering if anyone ended up with a diagnoses involving a sleep disorder with a similar story…?
I’ve had constant daytime sleepiness that’s only been getting worse over the past couple years-I’ve seemed to have hit a personal max on it in the last year though it’s been slowly getting worse for about 6-7 years now. This is in addition to the inability to concentrate on words/focus -it’s like I know the words but I can’t put them all together in a sentence to make sense- brain fog, and overall feeling like I’m in a dream most of the time.
Generally, it takes me a while to fall asleep (though, interestingly enough, I’ve been able to fall asleep in about 1/3 the time since starting adderall - maybe because it works to prolong REM latency?). Once asleep, though, I can seriously sleep FOREVER. Also, it seems like I have a 50/50 chance of waking up in the morning either in an extreme panic (heart racing, jumping out of bed) or literally either having to roll myself out of bed/count to three and violently jump up or I’ll fall back asleep…
I’m a psychopath in the morning, too…I remember my family always teasing that “I’m not a morning person”, but this is something different; I’m so aggressively angry it’s like I’m a different person. I could truly hurt someone just for saying “good morning” before an hour after I wake up. It’s always been that way.
I used to take naps every day after school and even through college would skip classes to nap (just attributed that to…well…college lol), but even as a kid half of our family pictures include grumpy ole me standing to the side LIVID because I was tired.
Also, since childhood I’ve been told I’ll have these episodes where I sit straight up in bed, eyes completely open, and talk gibberish-counting off numbers, etc-then violently lay back down like it was nothing…in addition to randomly talking in my sleep…and I do not recall any of it.
Another interesting tidbit…although I sleep so hard I don’t remember it at night, my naps during the day are cRaZy. I’m always half in and out of consciousness, lucid dream frequently, and have vivid dreams I remember and wake directly out of. It’s very fragmented and all over the place.
One time I had a dream that my fiancé was grabbing my leg trying to wake me up (I was in the same position, clothes, everything that was physically accurate in real life) and I remember actually kicking at him, only to snap to consciousness at the movement and realize I had really been asleep/dreaming the whole thing…
I also had this…moment? Idk what to call it when at a work dinner it was like I was conscious but not conscious…like I was physically following the conversation between people at the table with my head and nodding and smiling, eyes open, but I wasn’t there. Then a few seconds later I snapped to and realized I had NO IDEA what the conversation had moved on to…no idea what they were talking about. (This was at about 8/9 pm while taking adderall XR 30mg at around 7 am)
Now for the drugs:
What’s really interesting is that adderall has seemed to help me fall asleep a little faster (although still zoning out a lot / brain fog / always tired), but SSRIs -I think I went through every available SSRI/SNRI/tricyclic antidepressant before trying stimulants-always made my dreams SUPER vivid. Like I couldn’t differentiate between dreams and reality anymore.
Anybody have any similar stories/experiences or diagnoses? I’d love to hear them!!
Developed migraine w/ aura about a year and a half ago.
Pretty frequent headaches starting about six months ago in left temple, sometimes tingling/numbness radiating from temple down jaw/into ear.
Lab tests showed a positive ANA / SS-A antibody of 3
Constant sinus issues-have not subsided in 2 years now.
I’ve had low serum ferritin (around a 7) treated with EZFE 200mg for over a year…it won’t really get above 30-40-I assume because of the PPIs I take for stomach ulcers.